Tag Archives: #adulthood

Is There Really A Cure For Autism and Do We Want To Have It?

John Graduation 2016
John Graduation 2016

Our youngest John finally made it! He graduated high school with a bang. With over $400k in therapy since he was two years old, he was able to came out as a nonverbal child to a grade 12 graduate with a full diploma! Yes, we did it! WE DID IT! I feel like shouting these words over and over again. I am so proud and elated for his future that I sobbed like a baby. His soothing words of “It’s okay, Mama” had made all the difference in this world.

So, if I am asked today on whether I am interested about a cure for autism? Not anymore. At some point when he was two until he was like 6 or 7, I was hoping that someone brilliant will suddenly just come on national television announcing that they finally found the real cause of autism or have discovered some drugs that will untangle the brain of each and every child with autism in the universe. Yes, I had hoped before. In fact, I prayed a thousand times for it so my son can have more of everything.

But you see, year after year, I am given every reason to believe that John is perfect as he is. Amid all the struggles that all of us had went through, we were able to rise up the occasion and raised a sweet and thoughtful young man who sees more goodness and kindness in others more than he sees in himself.

Compassionate, this is the perfect word for my son John. He knows when I feel down and agitated. He knows when to give you a pat in the back without even you blurting any word of what’s bottling inside you. It’s like he can see through you and, without judgment or whatsoever, he simply understands. He recognizes his but never complains about them. He is aware of his frailties but smile head on even when the whole world is frowning upon him.

Enjoying his graduation cake
Enjoying his graduation cake

As an autism parent, I know there are others out there who are still trying to unravel their children’s condition. Some of them are, perhaps, hoping that a magic vial will be available soon to relieve them from the constant anxiety and frustrations often common in households with autism kids.

Trust me, the frustrations will always sneak up on you every now and then. It will haunt you and make you feel so down it feels like you will never stand tall and proud again. But it is up to you to let such feeling gnaw at your being. It is up to you to let others get into your skin. Your child, your most precious one maybe different from the rest but he is yours and yours alone. He is a gift that needs to be cherished.

So, if you ask me if I am interested in a cure. Stop it already! I may still not be satisfied in the success that John enjoyed today because I know he can do better in the future, I am confident in my skin that I have raised a good son—autism and all. There is no amount of cure that will change him. He is exceptional as he is and for that, I am forever thankful to the Heavens above.

How about you? What’s your autism story? Share your thoughts with us. Feel free also to visit our Facebook and Twitter pages. We’d love to hear from you.

The Discombobulating World of Autism Research

Photo Credits: Creating Brighter Futures _ Autism Research
Photo Credits: Creating Brighter Futures

It is my daily ritual to sift through various autism research, news and blogs articles to be posted on my social media accounts and, I couldn’t help but marvel at the degree of enthusiasm the medical community has placed in unraveling the cause, origins and what-have-you of Autism. Some even make “color” classifications due to the enormity of the whole spectrum. With one neuroimaging after another, truly the dissection level of Autism Spectrum Disorders (ASD) comes incomparable.

Causes of autism have piled up over the years. First, there’s the “coldness” of a mother’s heart smothering the baby’s sensory impulses leading him to have autism all his life. Then comes the genetic factor only to be left for further research due to inconclusive evidence. Environmental elements have also been targeted like pollution, insecticides, GMO, and so on. Others focus pregnancy-related issues like C-section, drinking folate, and other observations. Recently, there’s also the issue of circumcision among male kids with autism.

Who doesn’t know the vaccine-autism controversy that will forever hound communities across the globe? It is a never-ending debate causing unnecessary rifts among advocates and communities. Even top personalities join in the fray to stress a point creating a fissure among the pro and anti vaxxers.

Far more than this, researchers from top universities across nations had continuously put their focus on dissecting the human brain to look for that teeny-weeny speck of difference between a child with autism and that of a so-called neurotypical kid. Recently, neural pathways of children with autism are being monitored under a microscope to help find answers on the why’s and why not of autism.

Yes, each day when I sift through these autism research articles I am becoming more discombobulated with the emerging causes being thrown my way. Sometimes, it feels a little bit crazy for me to laugh until my insides hurt so much from frustrations over these studies which, as always, are deemed “inconclusive” and needs further research – and each research pierces my heart particularly when kids with autism are always placed in a microscope only to be compared to neurotypicals.

I have no beef with all these autism research, studies, surveys, and so on.  To my understanding, there are parents and families out there who are still groping in the dark for answers and, perhaps, by reading through those explorations and investigations, they will find peace and acceptance in their midst.  So, I’m cool with that hence, I will continue to share them on people’s newsfeeds. This is in the hope that somewhere, somehow some families can heave a sigh of relief.

John making awesome apple pies
John making awesome apple pies

As for me, I have long accepted John as he is. He’ll be turning 18 soon and will technically be an adult. Instead of looking for answers that have eluded me for the last 15 years or so, I am more grounded to the belief that there is a much higher reason on why he has autism. Today, my main concern is ensconced on his future, as an adult – a thriving one at that. With this also comes that fervent hope for more services, workshops, and opportunities to open up for adults on the spectrum noting the fact that we, parents, won’t be around forever.

For now, I will allow myself to be discombobulated with all these autism research clippings. Some days, it just felt so great to have a good laugh until you can’t stop tears from flowing in your eyes.